Happily Divorced And After

California Census Chief: Don’t Be Invisible. Counting Everyone Comes Down to Money and Power

By Charlene Muhammad | California Black Media

Even if you have people living with you who are not on your lease – or say your affordable housing application – you should still make sure they are counted during the 2020 Census, says Ditas Katague, director of the California Complete Count office.

“No enforcement agency, federal, local, or anything, can get that data,” she assures Californians. “It’s safe.”

Last week, Katague visited Los Angeles county, the hardest-to-count area in the United States and also a region in the state with census tracts where the most African Americans live. She was on a stop that was part of a statewide push to encourage all Californians to respond to next year’s census forms.

She sat with California Black Media writer Charlene Muhammad to talk more about the state’s  $187.3 million investment to get an accurate count of all Californians. Katague also shared details about what her office has been doing so far to achieve it, and she give some insights on why it has been so hard for census workers to get the African-American count right in the past.

CALIFORNIA BLACK MEDIA (CBM):  What has your office done to reach out to Blacks in California – particularly to the the Black population here in Los Angeles?

DITAS KATAGUE (DK):  As you know, statewide, the money and the investment that both the governor and the legislature have made across the state have been unprecedented. 

That’s because California is the hardest-to-count state in the country. In fact, the City of L.A. is the hardest-to-count city and Los Angeles County is the hardest-to-count county in the hardest-to-count state. 

So, even though our efforts are unprecedented, these are the reasons that we need to do that level of outreach. The U.S. Census is actually a federal operation, and so here at the state level, we don’t control any of the actual counting.  We don’t design the form, but what we can control is reaching out, educating our Californians to make sure that they know how important it is to respond.

And to that end, we’ve divided the state. We’ve used data to really inform our partners on the ground about where they should be reaching out and to whom.  I’m up in Sacramento. Nobody wants to listen to me about why they should be filling out the form.  It’s really about getting the word out through trusted community partners on the ground, and really connecting with folks to say why is it so important and what an accurate count means for them on the ground.

CBM: L.A. – the hardest to count in the country!  I didn’t know that. What makes L.A. and the state the hardest-to-count places?

DK: Well, for Los Angeles County, one of the things is that it’s so very diverse.  In L.A. Unified School District, they speak over 200 languages. That is what makes our state so beautiful and so diverse, but it also makes it very hard to count. 

Now, when we talk about hard to count from the state level, we looked at the state and we took these14 variables and we came up with a hard-to-count index based on them.

(Those variables are: Percent of households without broadband subscriptions; percent of households that are non-family; percent of households that are renter occupied; percent of housing units that are vacant; percent of households that are crowded with more than 1.5 persons per room; percent of population that is foreign-born; percent of adults (25 or older) who are not high school graduates; percent of population with income below 150 percent of the poverty level; percent of households receiving public assistance; percent of persons (ages 16 or older) unemployed; percent of limited-English households; percent of persons who moved from outside a county in the past year; percent of population under 5; and percent of total housing units with three or more units in a multi-unit structure.)

What does that mean?  Well, that is really because the enumeration is address-based, so it’s where you are.  In order to be invited, you have to have an address, right? Think about the difficulty of counting people that are living in multi-unit apartments, or if they’re living with non-family members. So, say there is an apartment, and there are four of us living there, and we’re not related. Sometimes, one person will get the mail and the invitation to respond, and they’ll respond for themselves but forget the other three roommates.  So, it sort of compounds itself in terms of the difficulty to be counted.  And, of course, we have a lot of people who rent.  We have a lot of people here in Los Angeles that have limited English, or that are new to the country. We have a lot of folks who are scared, or just kind of don’t care, and so it’s not just one thing that makes folks hard to count. It’s a number of things if you kind of layer them on top of each other.

CBM: Why is the Census important for the Black community?

DK: It’s important for all our communities, of course, but particularly for the Black community.  I mean they have to know we exist for us to resist, right?  And if they don’t know we’re here, then we’ll be ignored. I say that both for the Black community and also for the Native American community.  My Native American folks up in Northern California, the way they look at it is to save their water, and that’s what really resonates with them, because if they don’t know you’re there, they’ll take the water.  That’s how they feel, so you have to think about that within your community. If people don’t understand how strong and how powerful our communities are, they don’t understand what kind of voice we could have and will have. So, it’s really about being seen. It’s about standing up. It’s about no longer being invisible for all of our communities.

CBM: What has been your outreach efforts in the community so far?

DK: We’ve divided the state into regions, and so here in Region 8 is the Los Angeles County area. We have a contractor – California Community Foundation – and they’ve really done a great job looking at the data and then identifying partners because they’ve been involved in L.A. a lot.  And they’ve been funding partners on the ground to talk about it right now.  This time around, we’re doing an education component. We’re also identifying what I call the grass-top leaders, so maybe not all the way down to the ground just yet, but folks that are leaders and movers and shakers in the community to let them know why it’s so important.

Then, as we move into Spring – from January and February to March of 2020 – that’s when the education starts to move in to motivate and activate. That’s when we want everyone on the ground – from high school students all the way to our elder folks – to understand and be ready to respond. So, the efforts we’re doing right now are focusing on the importance, and it’s really about two things. It’s about power and it’s about it’s about money. We talked a little about power, about being heard when it comes down to it. And it might be a little bit nerdy, but it’s our Congressional representation, too. So, we could lose a seat or two – very serious – if we’re not counted and they don’t know where we are. So, I already joke around that we don’t need Texas to be counted. They don’t need to answer (laughs), but I mean it’s because it’s a zero-sum game in terms of the way they divide up the seats. It all depends on the response of other folks. 

And it’s about money. People say “Oh!  It’s about $1,000 per person, per year!”  But what does that actually mean? The way I think about it when I talk to my 16-year-old daughter is: What if she, for a semester, didn’t have a chair to sit in, or a desk to sit at during her math class at this public high school? If they don’t know we’re here, if we forget children – and children 0-5 have often, in the past three decades, been missed for a number of reasons. A child that is born in 2020 will be in 5th grade in 2030, and if they’re missed, will they have a seat or will they have to sit on the ground?  So, in terms of money, it’s about health clinics. Will that health clinic be located close enough?  I always talk about how a friend’s dad had a stroke, and he had to travel 10 extra minutes to get to a hospital because there wasn’t one close enough, and those 10 minutes can make a difference between life and death or being disabled or being able to heal.  So, in terms of health care, in terms of schools, our education, in terms of traffic, everyday traffic, the roads are getting worse and worse, but if we don’t know, we’re unable to plan for how many people are going to have cars. It has everyday impact on our lives.

CBM:  Let’s talk more about the fear factor. For instance, in the Black community, you may have someone with Section 8 (housing assistance), or people who may have formerly incarcerated persons, still in the system, living in their homes. One big issue is the trust factor with the Black community.  People are like, “We’re not telling the government anything!”  How have you all been able to get your message to permeate that attitude?

DK: There’s been a lot of testing done, and so we’re well aware of that. And there are different trust issues for different communities. And so one of the things we’ve been looking at is if they’ve tried different messages. But, at the end of the day, people think everybody’s going to get stuff on their Facebook and WhatsApp. At the end of the day, for me, even if technology is really quick, it’s really that face-to-face, that person-to-person communication that is most important. That’s human nature and that doesn’t change. That’s why the investment that we put out there has been to make sure that people in the community, whether it be faith-based, whether it be service-based – your hair stylist, your nail technician – whether it be community members that you already deal with, or even your healthcare professional in your clinic. We want to go where people go already in the community and we want them to be trusted. A part of that is being able to tell people that there’s Title 13 that guarantees privacy. 

People are like, “Well, why do they need to know my name? Why do they need to know all this stuff?”  And I think about it and it seems kind of invasive, but they do keep it private. No enforcement agency, federal, local, or anything, can get that data, so it’s safe.

I view the Census as a snapshot in time, like those coffee table books, and if you’re not counted, you’re missed.  And then, to quote my favorite play “Hamilton,” “who will tell your story if you don’t?”  So it’s to up to us to rise up, to be counted, and to be able to put a stake in the ground to say “I’m here, and there’s no reason why I shouldn’t be recognized and counted.”

SB Pastors United Hosts Memorial Services Honoring December 2, 2015 Terrorist Attack Victims

SAN BERNARDINO, CA— The San Bernardino Pastors United (SBPU) has taken the lead with community pastors, business leaders, dignitaries, and ordinary people to have a memorial service in honor of the victims and their family members whose lives were forever changed as a result of the terrorist attack on the City of San Bernardino on December 2, 2015.  

The pastors, community residence will march in solidarity for 15 minutes to the site, with children, youth, leaders, residents young and old, all on one accord marching until they get to ground zero for a pre-arranged setting for 30 to 50 people. The invited guest speakers include former Mayor Carey Davis, former Chief of Police Jarod Burguan, current Mayor Valdivia and City Council, Congressmen Pete Aguilar, Assemblymember James Ramos, and Assemblymember Eloise Reyes-Gomez, and Senator Connie Leyva’s office to name a few.

The SB Pastors United is pursuing a request that December 2, 2019 and each year hereafter be set-aside as a SPECIAL DAY in the city of San Bernardino. The program will conclude with the releasing of doves, and community uniting to together to heal, and pray and fellowship together.

We are asking the community to join us, as we remain strong, providing:  “Healing, Change, and Progress” to the City of San Bernardino, for more information call (909) 353-7977 or contact  The Way World Outreach Church at (909) 884-7117.

Annual Thanksgiving Event Provides Holiday Meals, Clothing, and Job Resources to San Bernardino Community

The Benjamin E. Jones Community Resource Center provided turkeys, clothing and job opportunities to hundreds of people on Saturday during our annual holiday event

SAN BERNARDINO, CA— Hundreds of local residents in need received clothes, job opportunities and Thanksgiving turkeys with all the trimmings on Saturday, November 23 at the annual Thanksgiving Turkey Giveaway hosted by the Benjamin E. Jones Community Resource Center in San Bernardino. 

The center provided more than 300 turkeys received through donations by the Morongo Band of Mission Indians, Community Action Partnership of San Bernardino and other organizations. 

In addition to receiving holiday meals, clothing was available for purchase for just a $1 and staff from ARC Staffing agency was in attendance to meet with those interested in pursuing job opportunities in the area.

“As a small organization, we are proud to be able to offer comprehensive assistance to our community during the holidays,” said  Paul E. Jones, CEO of the Resource Center and the Pastor of Zion Elect New Generation Ministry in San Bernardino. “Our mission is to transform communities; one life at a time, and the additional services offered this year offers new opportunities to those in need”.

During the event, more than 50 people found new job opportunities.

NAACP Local Chapters Host Fund Dinner, Labor Awards

By Naomi K. Bonman

The end of the year is one of glam and community excellence! On Friday, November 22, the NAACP San Bernardino Branch held its Freedom Fund Banquet at the Arrowhead Country Club in San Bernardino, California. Prior to that, the NAACP Riverside Branch held their 7th Annual Salute to Labor Awards Ceremony on Tuesday, October 15 at the Riverside Convention Center in Riverside, California.

The 2019 NAACP Riverside Salute to Labor Honorees were: Ricardo Cisneros, Central Labor Council/AFL-CIO-Labor Leader of the Year; Terrance Bynum-IBEW #47-Labor Hall of Fame Award; and Joseph K. Kaplon-Wohlner Kaplon Culter Halford & Rosenfeld Law Office-Friends of Labor Coalition Award.

Group awards were also given. The Outstanding Community Outreach Awards went to: Harold Acord-Moreno Valley Educators Association; Shani Dahl-Riverside Unified School District; Captain Joseph Reed-Riverside Fire Department; Seval Haley, Teamsters Local 1932; Teamsters Joint Council 42; and Teamsters Local 63. For other nominees, please view the photo below.

The 22nd Annual Celebration of Excellence Takes Things Up a Notch

Write by Naomi K. Bonman

On Saturday, November 23, the Inland Valley News celebrated it’s 22nd Annual Celebration of Excellence Awards Gala & Charity Auction. The celebration was held at the Ontario Convention Center in Ontario, California.

This year’s honorees were Hilda Kennedy, founder and president of AMPAC Business Capital; Josie Gonzalez, Supervisor 5th District San Bernardino County; Joseph Williams, Trustee San Bernardino Community College District; R. Michelle Decker, Chief Executive Officer, The Community Foundation; Michael G. Rademaker, CEO & Founder MGR Real Estate; George Jones, Esq. Kathy Patoff; Monk Hines; Sherie Rodgers; and Alise Clouser.

The proceeds from the event went to support the Morrow Pancreatic Health Foundation (MPHF). The MPHF will provide prevention, education and awareness around pancreatic related illnesses to underserved communities and populations that are prone to inadequate healthcare.

For more information and to view more photos, please visit www.inlandvalleynews.com.

Give the Gift of Love to a Deserving Senior this Holiday Season

Be a Santa to a Senior kicks off in Redlands

REDLANDS, CA—- The holiday season is also the season of giving and a time to share smiles with those around you. As you gather to drink hot cocoa and sing carols with family and friends, it’s important to remember there are seniors in your community who would love to celebrate, too. However, many seniors live alone, without someone to share this special time.

Home Instead Senior Care is once again offering the Redlands community a chance to spread joy to local seniors. Through the Be a Santa to a Senior program, community members can give a senior a special holiday gift. Since the program’s inception in 2003, the Be a Santa to a Senior program has mobilized more than 60,000 volunteers, provided approximately 1.2 million gifts and brightened the season for more than 700,000 deserving seniors nationwide. Last year, more than 800 local seniors received 3,200 gifts.

“The Be a Santa to a Senior programis all about including seniors in the joy of the holiday season,” said Geneva Labate, owner of the Home Instead Senior Care office serving San Bernardino County. “A simple gift shows them they are a loved and vital member of our community.”

Be a Santa to a Senioris a true community program, with generous support from Southern California businesses, nonprofit organizations, retailers, numerous volunteers and members of the community. The Home Instead Senior Care office serving Redlands has partnered with local organizations to help with gift collection and distribution.

It’s easy to help. Visit one of the participating locations listed below and look for the Be a Santa to a Senior tree on display from November 12 to December 17. Each tree will be decorated with ornaments featuring seniors’ first names and gift suggestions. Holiday shoppers can choose an ornament, buy the requested gift and return it to the store with the ornament attached. There’s no need to worry about wrapping — community volunteers and program partners will wrap and deliver the gifts to local seniors in time for the holidays.

“While it may seem like a small act of kindness, it can really make a difference for someone this holiday season,” said Labate. “Watching seniors open the gifts they received through Be a Santa to a Senior and seeing the smiles and appreciation on their faces is one of my favorite parts of the holiday season.”

Be a Santa to a Senior trees can be found at the following locations:

  • Alta Vista Credit Union, 1425 W Lugonia Avenue, Redlands, CA
  • Jose’s Mexican Restaurant, 33527 Yucaipa Blvd., Yucaipa, CA
  • Redlands Chiropractic, 620 Alabama St, Redlands, CA
  • Redlands Sewing Center, 422 E State St, Redlands, CA
  • Jake’s Bistro and Brew, 12170 4th St., Yucaipa, CA
  • Blossom Grove Alzheimer’s Special Care, 11116 New Jersey St., Redlands, CA
  • Jose’s Mexican Restaurant, 950 S. E St, San Bernardino, CA
  • Alta Vista Credit Union, 1425 W Lugonia Ave, Redlands, CA
  • Dream Dinners, 1404 Industrial Park Ave, Redlands, CA
  • Linda Valley Assisted Living, 25393 Cole St, Loma Linda, Ca.
  • Jose’s Mexican Restaurant, 2094 W Redlands Blvd., Redlands, CA
  • Mi Cocina Mexican Restaurant, 27961 Highland Ave, Highland, CA
  • Mission Commons Gracious Retirement Living, 10 Terracina Blvd., Redlands, CA
  • Martha Green’s Eating Room, 107 E Citrus Ave, Redlands, CA
  • Carlson Chiropractic, 529 Cajon St, Redlands, CA
  • La Loma Federal Credit Union, 26151 Mayberry St, Loma Linda, CA
  • Beaver Medical Group, 2 W. Fern Avenue, Redlands, CA
  • Arrowhead Aftercare, 27007 W 5th Street, Highland, CA
  • Beaver Advantage Health Center, 1600 E. Citrus Avenue, Redlands, CA
  • Beaver Medical Group, 1690 Barton Road, Redlands, CA
  • Beaver Medical Group, 33758 Yucaipa Blvd., Yucaipa, CA
  • Cotton Gin Fabric, 411 E. State Street, Redlands, CA
  • Golden Oaks Senior Living and Retirement Community, 33398 Oak Glen Road, Yucaipa, CA
  • Highland Care Center of Redlands, 700 E. Highland Avenue, Redlands, CA
  • InnovAge PACE, 410 East Parkcenter Circle, San Bernardino, CA
  • Somerford Place, 1319 Brookside Avenue, Redlands, CA
  • The UPS Store, 25745 Barton Road, Loma Linda, CA
  • Villas at San Bernardino, 2985 North G Street, San Bernardino, CA
  • Wildwood Canyon Villa, 22951 Colorado Street, Yucaipa, CA
  • Yucaipa Senior Center, 12202 First Street, Yucaipa, CA
  • Home Instead Senior Care, 461 Tennessee Street, Suite O, Redlands, CA
  • Epic Management, 1980 Orange Tree Lane Suite 103, Redlands, CA
  • Epic Management, 1615 Orange Tree Lane, Redlands, CA

For more information about the program, visit BeaSantatoaSenior.com or call (909)-370-0343.

For more information about how you can help seniors in your community, visit imreadytocare.com.

Assistant Chief Munsey Appointed New County Fire Chief

SAN BERNARDINO, CA—- Assistant County Fire Chief Dan Munsey will serve as the new Fire Chief for the San Bernardino County Fire Protection District effective immediately following his appointment by County Chief Executive Officer Gary McBride, with concurrence from the Board of Supervisors.

Munsey, who has served with County Fire since 1995, succeeds Mark Hartwig, who left the department in February to accept a job as fire chief for Santa Barbara County. Deputy Fire Chief Don Trapp has served as interim chief since Hartwig’s departure.

Munsey’s appointment concluded a nationwide recruiting effort that began shortly after Hartwig’s departure and yielded a broad field of applicants.

“There were several outstanding candidates,” McBride said. “But the Board and I concluded that Assistant Chief Munsey offered the best combination of the traits we were seeking: the leadership skills and commitment to operate County Fire effectively and professionally, and the ability and desire to work productively with public safety agencies throughout the county.”

“Being chosen to serve as fire chief for this organization is a tremendous honor,” Munsey said. “This is a team of highly skilled, dedicated professionals who serve a great community. I am excited about this opportunity to lead them and provide them with the tools and the environment they need to help County Fire fully achieve its great potential.”

In his most recent assignment as Assistant Chief, Division 11, Munsey was responsible for rescue operations, fire, and emergency medical response in the High Desert region, which is the largest of the five regions served by San Bernardino County Fire.

Munsey began his career in the fire service in 1995 as a paid-call firefighter. He became a full-time firefighter in 1998, where he was assigned to Lake Arrowhead. He has worked in every division of County Fire, promoting to captain in 2004, battalion chief in 2008, and assistant chief in March 2014.

Munsey holds a master’s degree in public administration with an emphasis on business and government and a bachelor’s degree in business administration from Grand Canyon University. Munsey is the current president of the Operations Section of the California Fire Chiefs Association and president of the Hi-Desert Water District Board of Directors. He has been active for a decade in the Rotary Club of San Bernardino, Victorville, and Yucca Valley.

In 2013, Munsey graduated from the San Bernardino County Management & Leadership Academy, a program that provides comprehensive management and leadership training to county employees. Participants gain theoretical and practical knowledge of public service management and leadership practices, with specific emphasis on understanding their application within San Bernardino County government.

The San Bernardino County Fire Protection District has about 1,000 employees, covers approximately 19,000 of the county’s 20,105 square miles, and serves more than 60 incorporated municipalities and unincorporated communities within four Regional Service Zones – Mountain, North Desert, South Desert and Valley – including the City of Grand Terrace, City of Hesperia, City of Needles, City of San Bernardino, City of Twentynine Palms, City of Upland, Town of Yucca Valley, and unincorporated areas. Additionally, County Fire provides contractual fire protection services to two cities: Adelanto and Fontana, via its independent fire protection district.

County Fire is a community-based, all-hazard emergency services organization providing emergency mitigation and management for fire suppression, emergency medical services, ambulance services, hazardous materials response, arson investigation, hazard and terrorism/weapons of mass destruction abatement, and technical rescue, including water-borne, flooding and mudslide, and winter rescue operations.

Fontana Unified Named PBIS District Of Year

FONTANA, CA—EMPIRE NEWS NETWORK (ENN)—- Fontana Unified School District was named Positive Behavioral Interventions and Supports (PBIS) district of the year for the West End and East Valley regions of San Bernardino County during an awards ceremony on November 14.

The district also had two platinum award-winning schools – the highest honor bestowed by the California PBIS Coalition – and 14 other silver and gold medal schools at the event.Harry S. Truman Middle School and Citrus Elementary School were Fontana’s platinum-winning schools.

Paul Pagano of Fontana Unified accepting the PBIS DIstrict Of Year Award with Kim Cavanagh, director of Curriculum/Instruction and Academic Enrichment for San Bernardino County Superintendent of Schools.

The districts’ other gold and silver schools honored during the ceremony were: Alder (silver);Cypress (gold); Date (silver); Fontana High (gold); Dolores Huerta International Academy (gold); Juniper (silver); Jurupa Hills High (gold); Live Oak (silver); Mango (silver); Randall Pepper (silver); Sequoia (gold); Sierra Lakes (silver); Southridge Tech (silver); and West Randall (silver).

They were among a record 186 schools and programs from the West End and East Valley regions of San Bernardino County that received recognition for their platinum, gold and silver awards at the ceremony, which was held at the Way World Outreach Church in San Bernardino.

The event was hosted by San Bernardino County Superintendent of Schools’ PBIS program.

For a list of all the schools and district recognized at the awards ceremony, visit County Schools’ website.

A Matter of Life and Death: Group to Pull Plug on Life-Saving Aid It Gives to Nearly 4,000 California Dialysis Patients

By Ana B. Ibarra | Special to California Black Media Partners

Russell Desmond received a letter a few weeks ago from the American Kidney Fund (AKF) that he said felt like “a smack on the face.”

The organization informed Desmond, who has kidney failure and needs dialysis three times a week, that it will no longer help him pay for his private health insurance plan – to the tune of about $800 a month.

“I am depressed about the whole situation,” said the 58-year-old Sacramento resident. “I have no clue what I’m going to do.”

Desmond has Medicare, but it doesn’t cover the entire cost of his care. So, with assistance from AKF, he pays for a private plan to cover the difference.

Now, the fund, which helps about 3,700 Californians pay their premiums and out-of-pocket costs, is threatening to pull out of California because of a new state law that is expected to cut into the dialysis industry’s profits – leaving patients like Desmond scrambling.

The letter portrayed the fund as helpless. “We are heartbroken at this outcome,” it read. “Ending assistance in California is the last thing we want to do.”

But supporters of the new law are calling the threat a scare tactic. State Assemblyman Jim Wood (D- Healdsburg), the author of AB-290, said there is nothing in the measure that prohibits the fund from continuing to provide financial assistance to patients.

“AKF has simply made a conscious decision, without merit, to leave the state despite the many accommodations I made by amending the bill in the Senate to ensure that it can continue to operate in California,” Wood said in a written statement.

What’s behind this dispute, critics of AKF Say, is the tight relationship between the fund and the companies that provide dialysis, which filters the blood of people whose kidneys are no longer doing the job.

People on dialysis usually qualify for Medicare, the federal health insurance program for people 65 and older, and those with kidney failure and certain disabilities. If they’re low income, they may also qualify for Medicaid, which is called Medi-Cal in California.

But dialysis companies can get higher reimbursements from private insurers than from public coverage. And one way to keep dialysis patients on private insurance is by giving them financial assistance from AKF, which helps nearly 75,000 low-income dialysis patients across the country.

The fund gets most of its money from DaVita and Fresenius Medical Care, the two largest dialysis companies in the country. The fund does not disclose its donors, but an independent audit of its finances conducted by the accounting firm CliftonLarsenAllen, LLP,  reveals that 82 percent of its funding in 2018 – nearly $250 million –  came from two companies.

Insurance plans, consumer advocacy groups and unions have accused AKF of helping dialysis providers steer patients into private insurance plans in exchange for donations from the dialysis industry. Wood said his bill is intended to discourage that practice.

 AKF CEO LaVarne Burton denied the accusations and said her group plays no role in patients’ coverage choices.

Starting in 2022, the new law will limit the private-insurance reimbursement rate that dialysis companies receive for patients who get assistance from groups such as AKF to the rate that Medicare pays. The rate change won’t apply to patients who are currently receiving assistance as long as they keep the same health plans. The bill will also address a similar dynamic in drug treatment programs.

To determine which patients receive financial aid, the law will require third-party groups to disclose patients’ names to health insurers starting July 1, 2020.

These disclosure requirements are spurring AKF’s decision to leave, Burton said. She argues that they conflict with federal rules and violate patient privacy.

“AKF has no choice but to leave or seek legal relief,” Burton said.

In mid-October, the fund started sending letters to its financial aid recipients in California warning of its departure. And Nov. 1, it joined two dialysis patients in filing suit against the state, asking a U.S. District Court to rule the law unconstitutional.

Gov. Gavin Newsom cautioned against such actions when he signed the bill, and urged “both opponents and supporters to put patients first.”

But as the threats and legal battle play out, patients are caught “squarely in the middle,” said Bonnie Burns, a consultant with California Health Advocates, a Medicare advocacy group.

Their options may be limited, she said. Those who don’t work won’t have access to employer-sponsored coverage to make up the difference. And in California, Medicare recipients under age 65 are not eligible to purchase supplemental insurance known as Medigap.

The state Department of Managed Health Care offers a fact sheet for affected patients, directing them to programs such as Covered California and Medi-Cal.  

Paige Hosler, vice president of insurance management at DaVita, said insurance counselors and social workers at the company’s clinics are working with patients to find other options. “We will continue to treat all patients, regardless of insurance status,” she said.

Hosler noted that some patients may qualify for DaVita’s charity care program. 

Dialysis companies have been at the center of recent legislative and ballot-box battles, and have spent big to defend their bottom lines. Last year, they poured a record-breaking $111 million into a campaign to defeat Proposition 8, a ballot initiative that would have capped their profits. The measure failed. 

The industry also spent about $2.5 million in California on lobbying and campaign contributions in the first half of this year to oppose Wood’s measure. 

Desmond said he understands why lawmakers targeted the dialysis industry but can’t fathom why they did so at the expense of patients.

Desmond was laid off from his job as a computer programmer in Massachusetts in 2009 and moved to California to join his brother. One year later, he was diagnosed with kidney failure.

He lives off his Social Security Disability Insurance benefits, which come to about $2,000 a month after his Medicare premiums are deducted. Medicare pays for 80 percent of his care.

He also qualifies for Medi-Cal coverage that comes with high out-of-pocket costs, so he relies instead on a private Aetna insurance plan to cover the remaining 20 percent.  The American Kidney Fund has been paying the premiums for his private plan since 2015. 

“What they did is take away our life raft and left us to drown,” he said of lawmakers.

Brian Carroll, 40, of Sacramento, has been on dialysis for five years. He moved back in with his parents in 2016 because, he said, dialysis left him too weak to work. 

“I am now completely depending on other people,” Carroll said. AKF pays the $270 monthly premium for his private insurance plan that covers what Medicare doesn’t.

“That’s an entire month of groceries and gas for me,” he said. 

Carroll said he supported Proposition 8, even though dialysis companies argued that it would force them to cut back services and shut down clinics.

In this current situation, he’s not sure whom to blame – the lawmakers, who passed the law with no back-up plan for patients, or the fund, which is essentially holding patients hostage.

“What I do know is that you can’t just leave dialysis patients like this,” Carroll said. “It’s cruel.”


This story was produced by Kaiser Health News (KHN), which publishes California Healthline, an editorially independent service of the California Health Care Foundation. KHN is not affiliated with Kaiser Permanente.

Can These Powerful Black Leaders Join Forces to Close the Achievement Gap for Black Children?

By Joe W. Bowers Jr. | California Black Media

EMPIRE NEWS NETWORK—ENN— When California Superintendent of Public Instruction Tony Thurmond announced the English language arts and math results of the California Assessment of Student Performance and Progress (CAASPP) test last month, we found out that African-American students’ scores lagged behind the much higher marks their White, Asian and Hispanic peers obtained. 

Statewide, just over 40 percent of all public school students met or exceeded standards in math and 51 percent were proficient in English.

Of those numbers, only 21 percent of African-American students were proficient in math, compared with 74 percent of Asian-American students, 54 percent of White students, and 29 percent of Hispanic students. In English, only 33 percent of African-American students were proficient. Compare that with 77 percent of Asian-American students, 64 percent of White students, and 41 percent of Hispanic students. Five years ago, California adopted the CAASPP assessment tests. Each year since then, our African-American student scores have ranked at the bottom of the results of all racial subgroups in the state. During that time, the achievement gap between Black students and their White and Asian peers has seen only marginal improvement, while getting wider between our children and their Hispanic counterparts.

The achievement gap between African-American and White students was first acknowledged over fifty years ago in a 1966 federal government study called the Coleman Report. The United States Congress commissioned the report after it passed the 1964 Civil Rights Act. Since then, education researchers and practitioners have been hard at work trying to identify the causes and propose what can be done to address it. Despite decades of education reform efforts and billions of dollars spent in federal, state and local funding, the achievement gap persists.

Ronald Edmonds, the late Harvard education researcher, said 40 years ago, “We can, whenever and wherever we choose, successfully teach all children whose schooling is of interest to us. We already know more than we need to do that. Whether or not we do it must finally depend on how we feel about the fact that we haven’t so far.”

To Edmonds and education experts like him, closing the achievement gap is absolutely solvable. The fact that little progress has been made to narrow it can be attributed more to the absence of political will than to any lack of social science research on the problem. The social factors that contribute to the achievement gap and the actions necessary to close it have been well studied, but public policymakers tend to avoid or overlook the data and recommendations that could cost them any  political capital. For example, in 2013 California revamped education funding to provide extra money for school districts with large numbers of “high-needs” students, mostly  kids from poor families or foster children and “English-learners.” The Local Control Funding Formula (LCFF) pushed expenditure decisions down from the state to local school districts because Gov. Jerry Brown and the legislature believed that those closest to the day-to-day operation of schools were best suited to identify what their students needed and would work best for them.

However, this has proven to not be the case, particularly when it comes to the performance of Black students in California. When the California Department of Education first introduced the new public education finance system in 2013, some lawmakers warned that the LCFF did not provide mechanisms to adequately track how local school officials would spend funds. Gov. Brown and groups representing school districts shot down attempts by legislators like Assemblymember Shirley Weber (D-San Diego) to address that concern. This month, California State Auditor Elaine Howle announced that her office’s recent examination of LCFF spending found that the system lacked sufficient oversight and accounting controls, confirming Weber’s reservations. Realizing that there has been very little progress toward closing the achievement gap despite the state having redirected billions of dollars to help solve it, may finally force lawmakers to now consider passing the kind of legislation Weber initially proposed.

Edmonds, who was African American, made the observation that progress toward resolving the achievement gap might not happen as quickly as it could because of how White policymakers viewed the issue. He did not question their sincerity about solving it, but was concerned about how they would approach it given biases they might have.

The former dean of the University of Pennsylvania Graduate School of Education, Andy Porter, who is white, validated Edmonds’ concerns when he made this statement, “I would like to see the achievement gap closed, but not at the expense of my kids. I think everybody feels that way.”

It is hard to assess how much the attitude Porter expressed, and the unstated biases of others like him, may have stalled progress toward closing the achievement gap, or if they have had any effect at all. But, in California right now, there is a unique opportunity if leaders in Education grow the political will to develop effective policy toward closing the achievement gap for African-American students in our state, even if attitudes like Porter’s continue to exist within – and wield influence on – our education system. 

Today our key Education Leaders in California are African American. They are Tony Thurmond, State Superintendent of Public Instruction; Dr. Linda Darling-Hammond, President of the State Board of Education; E. Toby Boyd, President, California Teachers Association; Margaret Fortune, Board Chair, California Charter School Association; and Emma Turner, President, California School Board Association. We need these leaders to come together to propose a functioning system that will guide those working hard to achieve results for African-American students in our state. Working with legislators like Dr. Weber, we will begin to close the achievement gap.

“There has never been a time in the life of the American public school when we have not known all we needed to in order to teach all those whom we chose to teach.” – Ronald Edmonds